Current Advocacy Work in Sickle Cell - The Global Perspective 

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APPG Hearing on access to medicines hearing

On Wednesday 28th April 2021 the All-Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions gathered together virtually for a hearing on access to medicines.Speaking on behalf of the sickle cell community, our Chair of Trustees, Kye Gbangbola, gave a talk on access to medicines and the affect on people living with sickle cell. His talk covered topics including prescription charges, the lack of new treatments (or treatments not being approved), patients being denied acute and chronic care, and COVID-19. 
​Kye’s talk can be seen below (6:10-12:34)

Kye Gbangbola - Chair of Sickle Cell Society on Crizanlizumab

Black History Month - Disparities - Elsevier

Enquiry into Sickle Cell Care - Kye's Evidence 

Sickle Cell Society AGM Chaired by Kye Gbangbola

Sickle Cell Care Standards