This book is jam packed with everything you need to know about sickle cell disorder (SCD), to help organisations and individuals on their journey of understanding and better healthcare. This is the baseline, the essential sickle cell text.
The guide is helpful, practical, and enabling, it is meticulously referenced and explained covering the condition, its history, impacts, and staying well. Also, healthcare services, treatments, cures, pain; causes and prevention, trait, transition, nutrition, work, and having a family. It covers global and national health leadership, political and clinical will to change; and the policy and legislation backing it. The guide seeks to encourage your participation in change, allyship collaboration, research and trials, patient empowerment voice and representation, equity, and race. I also shows how health economics has tremendous payback benefits from better treatment and cure for our big and little warriors. The global pandemic slammed the world hard, what happened contains many lessons for living well, and safeguarding communities and society better, now and in the future.
This is not a British American Book it’s an international Book. In the US the field of Haematology is booming, whilst globally every patient is a person we can learn from and deserves care, no one should be left behind.
There is no excuse for bad care in the medical emergency that is Sickle Cell Disorder (SCD). But when health organisations, supposed to be run on the principle of fair care for all, are unsighted on equality issues, and this leads to a litany of harm to people and their families, it is surely time for urgent action. Decades of failure have prompted political and health sector calls for changes in the quality and quantity of care to meet demand in this pioneering boom era of haematology.
This book offers a turning point in knowledge, education, and care, for people living with this debilitating genetic condition and their families, but also for medical professionals this is where solutions and understanding begin, out of the mouths of advocates and professionals at the heart of national and international change, driving awareness, and sustainable improvement, enhancing the resources and investment service users need to survive and thrive.
Kye was Chair of the Sickle Cell Society; one of 220,000 charities in the UK. When he handed on the reigns after nearly a decade in the role, the organisation had been turned around and complements such as ‘Thank you so much Kye and may I say, you have made the society loved and respected again, and ‘Kye was a powerfully inspiring, motivational, and interesting speaker, the medical students learnt so much from their session with him, and looked at ways of changing medical practice going Forward’. These were deeply warming to receive; such thanks emphasise a legacy of time well spent in the service of others.
This book makes clear health is so much more than just a medical matter. We should take this opportunity to thank the health care practitioners that get it, their care and kindness, and ongoing collaboration will ensure ‘no decision about me without me’ is a lived experience going forward.
Order prices
Book £35
Ebook £20
Please confirm which style you require and the number of copies in the comments below. Thank you
The guide is helpful, practical, and enabling, it is meticulously referenced and explained covering the condition, its history, impacts, and staying well. Also, healthcare services, treatments, cures, pain; causes and prevention, trait, transition, nutrition, work, and having a family. It covers global and national health leadership, political and clinical will to change; and the policy and legislation backing it. The guide seeks to encourage your participation in change, allyship collaboration, research and trials, patient empowerment voice and representation, equity, and race. I also shows how health economics has tremendous payback benefits from better treatment and cure for our big and little warriors. The global pandemic slammed the world hard, what happened contains many lessons for living well, and safeguarding communities and society better, now and in the future.
This is not a British American Book it’s an international Book. In the US the field of Haematology is booming, whilst globally every patient is a person we can learn from and deserves care, no one should be left behind.
There is no excuse for bad care in the medical emergency that is Sickle Cell Disorder (SCD). But when health organisations, supposed to be run on the principle of fair care for all, are unsighted on equality issues, and this leads to a litany of harm to people and their families, it is surely time for urgent action. Decades of failure have prompted political and health sector calls for changes in the quality and quantity of care to meet demand in this pioneering boom era of haematology.
This book offers a turning point in knowledge, education, and care, for people living with this debilitating genetic condition and their families, but also for medical professionals this is where solutions and understanding begin, out of the mouths of advocates and professionals at the heart of national and international change, driving awareness, and sustainable improvement, enhancing the resources and investment service users need to survive and thrive.
Kye was Chair of the Sickle Cell Society; one of 220,000 charities in the UK. When he handed on the reigns after nearly a decade in the role, the organisation had been turned around and complements such as ‘Thank you so much Kye and may I say, you have made the society loved and respected again, and ‘Kye was a powerfully inspiring, motivational, and interesting speaker, the medical students learnt so much from their session with him, and looked at ways of changing medical practice going Forward’. These were deeply warming to receive; such thanks emphasise a legacy of time well spent in the service of others.
This book makes clear health is so much more than just a medical matter. We should take this opportunity to thank the health care practitioners that get it, their care and kindness, and ongoing collaboration will ensure ‘no decision about me without me’ is a lived experience going forward.
Order prices
Book £35
Ebook £20
Please confirm which style you require and the number of copies in the comments below. Thank you