About
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Kye Gbangbola MBA FCIOB FIEMA CIHCM CEnv Dip DEA GDA PGDCM PGCDM EurBE GACSO LCSAP
For the best part of a decade Kye was the longest serving Chairman of the Kings Fund/GSK award winning Sickle Cell Society a national patient organisation in the UK. He uses his health literacy to drive, and advocate for patient centred care within a complex medical system. His book 'The Sickle Cell Guide' is an ultimate guide to sickle cell, from its history, living with the condition, genetic, treatments, cures, inequality, Coronavirus, improving health and Commissioning, and much much more. A book for people who thought they knew a lot, and for people who know little. Kye collaborates with a wide range of stakeholders including patients, the Department of Health and Social Care, Parliamentarians, NHS Boards, European Medical Association, National Institute for Health and Care Excellence, Medicines and Healthcare Products Regulatory Agency, and other licensing organisations. Kye is central member of the Sickle Cell and Thalassaemia All Party Parliamentary Group. In addition, he works with pharmaceutical companies, ambulance services, cell and gene research etc. Kye wrote the Foreword to the SC Society publication 'Clinical Standards of Care for Adults with SCD' and gave the parliamentary address at its launch. He gave a call to action, for medical professionals, patients, and their families, to use the Standard as essential intelligence for better health care. Kye says 'I love what I do, bringing business and health together; with government, for more resilient and thriving communities that lift humanity. However, there remains a big gap, and it lays between the world as it is, and the world as it needs to be; so I work hard, for the attitudes, and the unity needed, for all people to enjoy their human rights.' Recent sickle cell articles by Kye have been published by the Guardian Newspaper, and Elsevier Medical Journal: Guardian Opinion Piece about the treatment of sickle cell patients ref the Parliamentary Sickle Cell Inquiry Report ‘No One’s Listening’, and its recommendations https://www.theguardian.com/commentisfree/2021/nov/18/race-sickle-cell-patients-treatment-nhs Elsevier Medical Journal, Sickle Cell Disorder - It’s time to Level Up https://authors.elsevier.com/a/1eZtW9UKeTe9Sd |
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